The social environment of the person with haemophilia

Both the person with haemophilia and everyone involved in their daily lives must know what this particular bleeding disorder is. Everyone will be asked to contribute more or less to the prevention or treatment of bleedings.

The parent has a central role in educating the individual, when they are children, and their environment. The people in the close environment of the child (grandparents, teachers), who are involved in their mental and personality development, must be properly trained to protect the child from injuries, but mainly to know when and how to provide First Aids if needed.

The child itself must first understand the "peculiarity of their health", without feelings of shame, guilt or anger. They must learn to communicate their symptoms in order to receive the relevant treatment on time. Help them perceive the treatment process as a positive experience that helps make their blood "stronger".

There is a person with haemophilia in my environment. What do I do?

Do not be afraid. If you are a witness to an injury, remember that people with haemophilia do not bleed more, but for longer. The bleeding will eventually stop.
You have no risk of catching to haemophilia. Haemophilia is not contagious.
A person with haemophilia will not bleed from a minor scratch.
You may need to offer them First Aids. Find out how to do that.
Respect their privacy.
Do not avoid contact them.

1.Hemophilia in pictures Educator’s Guide. WFH 2008.
Available at:
2.WFH. Guidelines for the management of haemophilia. 2012.
Available at: [Accessed 24 October 2019].
3.Lorig, K., et al. Patient Education: A Practical Approach. 3rd edition. Sage Publications, 2001.

Under the aegis of: Initiated by:
This information is intended to inform and update the public and may in no way serve as a substitute to consultation with a doctor or other professional health service.
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