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By Anna Kouramba, Hematologist, Director, “Laiko” General Hospital of Athens, National Reference Center for Bleeding Disorders

A caregiver is considered to be anyone who provides unpaid support services to a child, spouse, relative, friend or companion who is ill, helpless, or in need of help with basic activities in their daily lives. In this regard, people who have a child, spouse, or other family member suffering from a bleeding disorder know first-hand that taking care of them can cause severe emotional and physical stress.

In Greece, it is common for a parent or spouse to do what is necessary for the child, husband or wife because of the love and obligation they feel towards them. Many times, it is almost like a second job. Always “work” overtime without days off or leave.

When someone is a “full-time caregiver” for a person with a medical condition or chronic illness, there is a significant burden for both their physical and emotional health. The stress that a caregiver feels when taking care of another person releases a hormone cascade, such as cortisol and adrenaline, which can lead to irritability, headaches or other pain, digestive disorders and a weakened immune system.

Unfortunately, caregivers often do not recognize that they have reached their limits in order to do something to reduce the burden. At the same time, they do not usually devote time to themselves. They may take time to see a doctor, do chores or clean the house, but they do not spend time relaxing or going for a walk. What caregivers do not understand is that if they rich a point where they are unable to take care of themselves then they will not be able to take care of others.

How to take care of yourself!

Start by assessing the situation

Since exhaustion often goes unnoticed, the first step is to make an assessment. It may be difficult to take time and reflect honestly and without judgment, but this step is crucial to start finding some balance and realize that you may need support. At the same time, try to understand some of the signs of exhaustion, such as: fatigue, sleep problems, anxiety, unexplained headaches or other pain, weight gain, frequent illnesses and social isolation.

Take a break

Like any employee, student or school pupil, the caregiver needs occasional breaks. Give yourself permission to take a break, e.g. to walk or have a coffee for half an hour. You can go to the cinema or take a walk with friends. You can hire a babysitter for at least half an hour or for an hour.

Allow you to express yourself

The caregiver may occasionally feel anger and resentment and immediately feel guilty for the thoughts they made. It is normal to feel a number of emotions. You should try not to allow yourself to be overwhelmed by your negative thoughts.

Add exercise in your life

One good way to deal with the negative effects of stress on your body is to exercise. You may prefer activities such as yoga and tai chi, which have a dual benefit: exercise the body and relax the mind.

Get involved with people who face similar challenges/situations

One of the best ways to deal with burnouts is to meet with other people, especially those who face challenges similar to yours. This interaction is very important, gives a sense of community and helps you to deal with situations more easily.

Talk to a professional

Talking to a social worker or consultant can help you boost your internal resources. Caring for a child with a bleeding disorder causes anxiety and fear. With the right tools and support of others, care becomes easier. You need to find a balance between taking care of your child or partner and taking care of yourself.

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